Are you a rare disease patient struggling to be heard by your doctor?
Do you feel like you have gone to appointment after appointment only to leave feeling more frustrated, stressed, and hopeless?
Imagine how good it would feel to be seen, heard, believed... and finally receive the proper care!
 With the right process, you can. â¤ď¸â¤ď¸â¤ď¸
Download the free 'How to Get Your Doctor to Listen' guide today!
When doctors ignore, dismiss, or misunderstand you, appointments can feel like a big waste of time and money. They leave you feeling frustrated, overwhelmed, and hopeless. But it doesn't have to be that way!Â
 The 'How to Get Your Doctor to Listen' PDF guide will give you a simple three-step process that will help you...
- advocate for your care
- get your doctor to listen to you
- focus on the care plan that is right for you âĽď¸âĽď¸âĽď¸Â
A Bonus Worksheet is included to help you identify the goals for your next appointment.Â
Download your free guide to be confident that your doctor is listening and that your appointments will be for you and about you!
Let us know where to send your Free Guide! We respect your privacy & won't send spam or share your information.
Hi, I'm Patti DeMuri!
I’ve helped hundreds of rare disease patients navigate the medical system and self-advocate to get the rare care they need. I created the How to Get Your Doctor to Listen Guide as the first step to help you on your journey to get the rare care you need.
Having advocated for myself and my family for 15 years for our 10+ rare diseases including EDS, MCAS, EoE, and POTS, I’ve learned how to navigate the system and advocate to get the right care. Without fighting with your doctors!
I believe in the power of strong relationships with the right doctors. I’m passionate about sharing my knowledge, strategies, and skills because I know they can help you get the care you need!
