I get it. You've had a terrible time with doctors...

not believing you, not listening to you, not knowing how to diagnose or treat your rare disease.  You've had doctors who were unkind, dismissive, and uncaring. 

Delays in diagnosis,  being told there is nothing wrong, that there is no hope and you just need to learn to live with it.  Left with debilitating symptoms that no doctor is able or willing to help you with. 

I truly understand because I've been there.  That's why I've put together this workshop - to help you find doctors who are right for you!

Maybe you are ready to give up, put up with the doctor you have, or take your chances on your own.  

Imagine finding a doctor who is not only interested in your rare disease but also willing to work WITH YOU. The rare doctor who listens, who believes you, and who welcomes your thoughts, input, and rare disease information.   A true partner who is focused on your goals, your priorities, and preferences.

What a difference working with the Right Doctor could make in your life!

If only there was a way to know if a doctor was a good fit...

This workshop does just that.

You will learn:

• To identify and clarify what you need in a doctor.
• A process to find doctors most likely to fit your needs.
• A simple technique to use at your 1st visit to help you decide if this is the Right Doctor.
• Bonus:   How to identify and avoid the wrong doctors who cause so many issues and heartaches. 

A good doctor may know about your rare disease...the Right Doctor will listen to you and work with you.

 What others are saying...

Hi, I'm Patti DeMuri

Rare Disease Coach, Retired Medical Mom, Rare Disease  Patient Advocate, TMS Co-Chair for Support Group Leaders, PNTC Care Coordination Certificate, ACPI Parenting and Family Coach

I am the owner and founder of Healing Hugs Haven.  My passion is helping rare disease patients navigate the medical system and work with their doctors so that they get the care they need to lead their best life.