If you are reading this you are likely a patient who has struggled to get care for your rare, complex, or chronic disease.
Here's the truth that no one tells you about the medical system...
It's broken.
Not set up for rare, complex, or chronic issues.
Resulting in:
- Short and rushed appointments where rare and complex patients don't have enough time to even share their issues.
- Rare and complex issues that don’t have clear causes or solutions being dismissed, left unaddressed or assumed to be mental health issues.
- Doctors assuming they know better than the patient and what the patient really needs.
- Rare and complex patients feeling anxious and stressed about going to appointments.
- Patients leaving appointments in tears, worse off than when they came, not being seen, heard, or understood.
But it doesn't have to be that way...
I'm going to show you something different where you can go from being a passenger to the driver in your healthcare journey.
Yes, I want to be in the driver's seat!
You may feel overwhelmed, frustrated, and hopeless...
but there is hope.
What if I told you that doctors share your frustrations...
Having rare, complex, or chronic issues, in a system that’s not set up for it means, that the doctor doesn’t have the support or time to understand and handle it.
In order to work together to overcome the challenges in the system, there needs to be a bridge between patients and doctors.
You can build that bridge with your doctors.
You can be a full partner in your care and help your doctor help you by understanding the process, ‘doing the work’ to get prepared, and fully participating in your appointment.
It's time to be seen, heard, and understood so you can get the collaborative care you need to lead your best life!
Imagine if
… you felt calm and confident instead of stressed and anxious because you had a technique to get your doctor to listen to you
… your appointments focused on your goals and priorities rather than wasting time and money on unhelpful appointments
… you were able to work together with your doctors because you had a strategy and plan for each appointment.
… your care plan was tailored to your needs because you knew how to ask the right questions at the right time
… you felt seen, heard, and understood ❤
Your Roadmap to Better Appointments and Care
This is why I'm excited to introduce you to...
Your Appointment Roadmap Course
Your roadmap to being seen, heard and understood in your appointments
so that you get the care you need.
In this live 5 week course you will discover how to:
Week 1: Focus your appointments on your goals and priorities by creating an appointment agenda.
Week 2: Save precious time in your appointments by clearly sharing your relevant information and symptoms in a way that helps your doctor.
Week 3: Get the right care plan for you by knowing how to ask the right questions at the right time.
Week 4: Be a true partner in your care by learning and using shared decision-making to create your care plan with your doctor.
Week 5: Be seen, heard, and understood in your appointment by learning how to calmly and confidently use your appointment plan and new skills.
About Me
Hi, I'm Patti DeMuri
Founder of Healing Hugs Haven, Patient Educator/Mentor, Retired Medical Mom, Rare Disease Patient Advocate, PNTC Care Coordination Certificate, ACPI Parenting and Family Coach
As the founder of Healing Hugs Haven, I'm passionate about helping rare, complex, and chronic disease patients gain the skills and confidence to navigate the medical system and work with their doctors to get the care they need.
I help patients learn how to advocate for themselves through teaching, mentoring, and coaching in classes and our ongoing membership.
I'm the mom of three adult children, two of whom were diagnosed with EoE and multiple other rare, complex, and chronic diseases since 2007. With 20+ years in the biotech field (molecular biology/genome analysis software/project manager) and a past 25 year marriage to a pediatrician, I have a wealth of knowledge and experience to bring to families dealing with rare and chronic illnesses. life.
Here’s what I’ll help you put into action during the live 5-week program:
✔ Module #1: Sharing Goals and Desired Outcome
- Appointment Framework and why it’s important
- How to create an Appointment Agenda
- Identifying and sharing common goals for the appointment
✔ Module #2: Sharing Your Data and the Doctor’s Assessment
- Your symptoms, ways to share data, and what questions to expect
- Your related history and context
- Sharing your questions, concerns, and biggest fears
✔ Module #3: The Discussion and Your Decision Making
- What your differential diagnosis is and how to help your doctor with it
- What shared decision making is and how to facilitate it with your doctor
- How to ask the right questions to improve your care and avoid misdiagnosis and mistakes
✔ Module #4: Your Care Plan and Summary
- Getting your care plan and next steps
- How to use the teach-back technique to make sure you are on the same page
- Understanding your doctor’s appointment notes including the SOAP format with examples.
✔ Module #5: Calmly and confidently use your appointment plan and new skills.
- What to expect and how to prepare for the appointment
- How to stay calm and confident during the appointment
- How to effectively follow up after the appointment
Bonuses
- Live access to Patti for 5 weeks in a private FB group
- Lifetime access to the course replays including video recordings, audio-only recordings, and transcripts.
- Fully searchable course replays - easily search for a term and bring up a list of times when used and a link to that spot in the video.
Templates for:
- Clarifying Goals
- Appointment Agenda
- Answering Symptom Questions
- Discussion Questions
Scripts and examples include:
- Sharing and setting the agenda for your appointment
- Sharing symptoms and your history
- Participating and helping your doctor with the diagnosis
- Discussing and deciding together on the care plan
Extra Bonus: Finding Dr. Right Masterclass
Isn't it time to get more from your appointments?
This course comes with The Healing Hugs Haven's seven-day money-back guarantee.*