Healing Hugs Haven

Support, info and coaching for families facing chronic illness

  • Home
  • About Us
  • Blog
  • Contact
  • Login
    • Member Home
    • Member Library
    • Join Our Free Membership
  • Forums
    • General Forum
    • Life with Chronic Disease
      • Advocacy
        • Adverse Allegations and CPS
      • Doctors
      • Evernote and other online tools
      • Family
      • Schools
      • Holidays, Parties and Events
    • Resources
    • Articles and Research
    • Disease specific
      • Disaccharidase Enzyme Deficiencies
      • EDS – Ehlers Danlos Syndrome
      • EGID – Eosinophilic Gastrointestinal Disease
      • Mast Cell Disorders
      • Mitochondrial Disease
      • Multiple Diagnoses
      • Other diseases
      • POTS – Postural Orthostatic Tachycardia Syndrome
      • Rare Diseases
      • VCD – Vocal Cord Dysfunction
    • Class Related Forums
      • Medical Team Class
    • Special Interest Groups
  • Our Community
    • Our Classes
      • Team Power Course
    • Our Coaching
You are here: Home / Archives for Resources

Easter Resources 2016

March 8, 2016 by Patti Leave a Comment

Easter Eggs, Crafts and Activities KWFA Tips to Safely Celebrate Easter with Food Allergies – includes school resources, how to celebrate, egg dying alternatives and Easter basket alternatives to food.   Eating With Food Allergies – Allergy Free Easter – includes crafts, fun allergy free foods for easter, allergy safe candy plus non-food treats. 

Filed Under: Resources, Support Tagged With: celebrate, chronic illness, Easter resources, food allergies, gluten free, non-food ideas, resource

Hidden Danger – Drug Shortage: 3 Steps to Stay Safe

February 15, 2016 by Patti Leave a Comment

A friend’s son has EoE (eosinophilic esophagitis) which requires frequent endoscopies to monitor the disease and treatment. Her son had a hard time recovering from his last scope and anesthesia but she had no idea why. Why was this time so different than the previous 10+ scopes? The Hidden Drug Shortage This article, “Drug Shortages […]

Filed Under: Dealing with Doctors, Resources Tagged With: chronic illness, dealing with doctors, drug shortage, medical team

Medical Appointments 3 Ways They Go Wrong

February 3, 2016 by Patti Leave a Comment

What is the most common event for people with chronic illness?  You guessed it – medical appointments. We look forward to them with such anticipation and hope… but too often they turn into a nightmare. We get drivers education and parenting/child birth education but nobody has taught us how to advocate and participate in our […]

Filed Under: Dealing with Doctors, Resources, Support

Chronic Illness Weekly Newsletter!

December 14, 2015 by Patti Leave a Comment

Facebook is a wonderful place to meet and get support from others with chronic illness but trying to find an old thread is not easy.  Even when I know what specific post I’m looking for, I’ve had a terrible time trying to search for it.  Add to that the fact that facebook often changes their timeline, and it makes it easy […]

Filed Under: Dealing with Doctors, Research, Resources, Support Tagged With: living with chronic illness

Lonely?  – 3 Ways to Find Support

April 4, 2015 by Patti Leave a Comment

  Having a child diagnosed with a rare disease or chronic illness is life changing.   Discussions about potty training, the soccer schedule, prom or ACT testing no longer hold the same interest or relevance. You feel anxious, lost and alone.   Doctor appointments, medical tests and tedious phone calls with the insurance company consume […]

Filed Under: Resources, Support Tagged With: chronic illness, families, find support, health, patient, research, social media, Support

You and your loved ones deserve the very best care!

Join our mailing list for tips and tricks on dealing with doctors and get the free Patient Appointment Planner.

Blog

  • Hidden Dangers Of the Wrong Doctor
  • Why Rare Disease Experts Need Our Help (and 3 Ways You Can Help Them)
  • When to Break Up With Your Doctor
  • Where your ER Visit issues truly begin
  • Logistic Toxicity – are you feeling lucky?

Search Forums

Recent Forum Topics

  • What to do if CPS Shows up at Your Door (from Homeschooling blog)
    4 years, 5 months ago
  • Responding to Adverse Allegations – MitoAction
    4 years, 5 months ago
  • Adult Patients and False Accusations – MitoAction
    4 years, 5 months ago

Legal Notices

  • Privacy Policy
  • Terms of Service
  • Disclaimer

Mission Statement

Our mission is to create a safe, supportive community for families facing chronic illness to learn, relate, heal and grow <3

Connect With Us

Feel free to contact us with any questions, comments or concerns. Read More »

Newsletter

Sign up here to be added to our newsletter.

© 2019 Healing Hugs Haven · Rainmaker Platform