Life with chronic illness often includes numerous health care providers which carries it’s own challenge. A collaborative health care team can enhance and improve your life whereas mismatch with even one doctor can have serious or even life threatening results. According to a 2010 Practice Fusion survey, patients average 18.7 different doctors. For those with […]
Oh, the irony…I recently shared the article Logistic Toxicity, An Unmeasured Burden Of Healthcare – Forbes, about Logistic Toxicity – the administrative burden of health care. The countless hours spent on the phone with doctor offices, pharmacies and insurance companies. The burden is real, unrelenting and unpredictable. Today I’m researching ways to contact the FDA because […]
Easter Eggs, Crafts and Activities KWFA Tips to Safely Celebrate Easter with Food Allergies – includes school resources, how to celebrate, egg dying alternatives and Easter basket alternatives to food. Eating With Food Allergies – Allergy Free Easter – includes crafts, fun allergy free foods for easter, allergy safe candy plus non-food treats.
What is the most common event for people with chronic illness? You guessed it – medical appointments. We look forward to them with such anticipation and hope… but too often they turn into a nightmare. We get drivers education and parenting/child birth education but nobody has taught us how to advocate and participate in our […]
Facebook is a wonderful place to meet and get support from others with chronic illness but trying to find an old thread is not easy. Even when I know what specific post I’m looking for, I’ve had a terrible time trying to search for it. Add to that the fact that facebook often changes their timeline, and it makes it easy […]