Coaching with Patti
One 60-minute zoom coaching session to provide immediate, short-term help for to you navigate the medical system and work with your doctor to get the care you need. (Cost: $150/session)
30 days of coaching including four 60-minute zoom coaching sessions and unlimited email support to help you create and implement your own individualized plan to navigate the medical. (Cost: $500/month)
Hi, I'm Patti DeMuri
Founder of Healing Hugs Haven, Patient Educator/Mentor, Retired Medical Mom, Rare Disease Patient Advocate, PNTC Care Coordination Certificate, ACPI Parenting and Family Coach
I'm passionate about helping rare, complex, and chronic disease patients gain the skills and confidence to navigate the medical system and work with their doctors to get the care they need.
I help patients learn how to advocate for themselves through teaching, mentoring, and coaching in classes and our ongoing membership.
I'm the mom of three adult children, two of whom were diagnosed with EoE and multiple other rare, complex, and chronic diseases since 2007. With 20+ years in the biotech field (molecular biology/genome analysis software/project manager) and a past 25 year marriage to a pediatrician, I have a wealth of knowledge and experience to help you.