Rare Care Connection Membership
Are you tired of...
- not being taken? seriously, listened to or trusted?
- being mocked, belittled, disregarded?
- struggling to find a doctor who knows about your rare disease?
- leaving appointments in tears because the doctor wouldn't help you?
You've tried finding a doctor to help you. You've tried talking to your doctor about your disease, your symptoms, and how bad your QOL is. You've even tried going to the top rare disease specialist but still, you struggle to get the care you need.
Our Medical System is Broken
Our for-profit system is focused on productivity and revenue generation rather than patient care. Appointments are getting shorter and doctors more distracted and stressed.
Rare Disease Care is Challenging
Rare diseases are hard to diagnose and even harder to treat. We take more time and energy while generating less revenue. It's no wonder why we can't get the care that we need.
We need to be the catalyst for change...
we have to do things differently if we want different results.
I've discovered that we can use our secret power of connection to build strong relationships with the right doctors. That when we use our secret weapon, communication, knowing what to say, who to say it to, and when to say it, our doctors start to listen.
You can change your health care and your life!
But, it takes more than simple insights and strategies. It takes help, guidance,, and coaching from someone with the experience and ability to guide you.
The Rare Care Connection membership provides your roadmap to better care!
Strategies, insights, plus coaching and guidance help YOU become your own advocate and create powerful partnerships with your doctors.
Imagine...
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meeting a new doctor without being scared
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finding the right doctors and medical team who listen to you and address your priorities
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safely and effectively dealing with the wrong doctor, without trauma
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feeling calm and confident instead of anxious and stuck.
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getting the care and support you need to lead your best life!
Help is here!
You don't have to do this alone! Patti is a rare disease patient and advocate, a retired medical mom, a parenting/family coach, was married to a doctor for 25 years, worked in biotech for 20 years at a genome analysis software company, and at Epic Systems, the medical record company. She combines her experiences and knowledge into easy-to-understand lessons and coaching calls to teach and guide you.
Here's how it works...
Monthly Master Class
Each month we'll focus on a specific topic
Monthly Q&A
Get live coaching and help with any of your questions.
Monthly Office Hours
Drop-in to get the feedback and support you need to move forward.
Community
Be a part of a supportive community
Rare Care Connection Membership
Step-by-step guidance and support to help you learn how to work confidently and collaboratively with your doctors to get the rare care you need!
Bev felt lost and stuck after losing her wonderful team of doctors. After attending Patti's 5 day free mini-course, she not only found a new PCP but she had the clarity and confidence to look for a new specialist too.
Who is this Membership for?
What if I want to cancel?
Is it worth the money?
Rare Care Connection Membership
Get the help and guidance you need to create a collaborative medical team that works with you to get the care that aligns with what you want!
