Top 10 Reasons Rare Disease Patients are Pandemic Pros

 Rare Disease Patients are...
  1. Pros at limiting infection and cross-contamination, sporting facemasks, washing hands, and effective cleaning
  2. Experienced at social isolation including homeschooling, and other creative options, work from home solutions and, finding support online
  3. Used to handling emergencies, monitoring symptoms at home, and employ multiple rehydration techniques
  4. Familiar with doing research by reading research articles, crowdsourcing ideas, and resources 
  5. Practiced at treasure hunting food, supplies, meds and necessities (TP anyone?)  
  6. Stocked with medical equipment and supplies to rival a medical supply company  (BP cuff, pulse ox, electrolytes, etc) 
  7. Blessed with Mad MacGyver skills to adapt and figure things out.  
  8. Experts at knowing our own bodies, symptoms, medical history, meds, and what we need
  9. Ph.D.s in dealing with red-tape and bureaucracy
  10. Resilient, used to living with uncertainty, the unknown and finding meaning in their lives!

 

3 Proven Appointment Strategies

Get our  '3 Proven Strategies to Get the Care you Need' guide to improve your doctor appointments and help your doctor help you get the care you need!

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