The situation in our hospitals is getting more chaotic so managing and advocating for rare disease care is even more challenging. A hospital is a challenging place for a rare disease patient at any time but the 'no visitor' rule has complicated communication and the ability for a loved one to help advocate for your care.
Depending on where you live, how much you follow the news and your general personality type, you may or may not be concerned about COVID-19. Panicking doesn't help anyone but being prepared may help and certainly won't hurt.
There are a lot of general recommendations out there but here are several specific ways that you can prepare as a rare disease patient.